Other useful sites and contacts:


Check List - for parents who have a child with a disability in the Waikato (click to link to this document)




Autism New Zealand Inc provides support, training, advocacy, resources and information on Autism Spectrum disorders including Aspergers Syndrome. Members include children, young adults and adults on the autism spectrum; their family/whanau; caregivers; and professionals who work within this field.




Key services:

  • the services for people with Autism Spectrum Disorders

  • the people who can give you expert advice

  • where you can find more information




The Royal New Zealand Foundation of the Blind is New Zealand's main provider of sight loss-related services to the blind and those with low vision.




Deaf Aotearoa provides information and resources on life for Deaf New Zealanders, Deaf culture and New Zealand Sign Language




Disability Support Link (DSL) is a community-based organisation that provides needs assessment and service coordination for people with disabilities. Disability Support Link aims to promote a person’s quality of life and create an environment that enables community participation and maximum independence. This is an essential agency for all parents to be aware of and linked in to.




The New Zealand Down Syndrome Association is a family/whanau driven organisation for people whose lives have been changed by Down Syndrome. The association seeks "to promote the participation of people with Down Syndrome in their community.” Its primary aims are:

• To inform and support families/whanau whose lives have been changed by Down Syndrome
• To promote and advocate for positive attitudes
• To promote the rights and inclusion of people with Down Syndrome
• To review policies and lobby government, and other agencies 




Fragile X New Zealand is a parent-led, charitable organization that has three primary aims:

  • to raise awareness about Fragile X within New Zealand

  • to assist individuals affected by Fragile X to reach their full potential

  • to support New Zealand families living with Fragile X




IHC works for all people who have an intellectual disability. They provide services, advocacy, support and information. IDEA Services, Timata Hou and Accessible Properties all fall under the ‘IDEA umbrella’.




Ministry of Education website




A charity which aims to:

  • Help people affected by rare disorders and their families to find essential information

  • Provides resources and information for rare disease support groups

  • NZORD has a network of 147 support groups and is a wonderful source of useful information and support links for parents, caregivers and family/whanau.




Parent to Parent aims to empower families and whanau of people with disabilities and health impairments through support and information. A great source of genuine support, understanding and meaningful action for any parent or family/whanau.




This website provides information and support for families affected by Rett syndrome.